Just Another Day


I have a protein deficiency. My levels can drop very quickly and unexpectedly. When they do, it sets off my CRPD (Complex Regional Pain Disorder). And sometimes I break out in a rash. The nerve endings beneath my skin throughout my body become so inflamed that, in simple terms, it burns my skin from the inside out. This rash on my neck is actually a burn caused by flaming nerve endings. This disorder is HELL. My body is like an inferno. It creates unbearable pain inside me that often is too much to cope with. Sometimes my extremities become swollen. Some days, like today, I have burning skin. Other days my body is so weak that I can’t function normally. I wake up at night in tears because the blankets covering me hurt so much.


 This what it’s like to have CRPD. There’s no cure. And it’s extremely hard to even get minimal control of the symptoms because this disorder has a mind of its own and can never be predicted. 


But I know that one big trigger for me are drops in my protein levels. So I’m sitting here at the trailer drinking what I consider to be my ‘medicine’ as I patiently go with the flow of life with Complex Regional Pain Disorder.

Advertisements

About Secret Stains

I wanna do something that matters, say something different, something that sets the whole world on it's ear. i wanna do something better with the time I've been given and I wanna try to touch a few hearts in this life to prove I was here. I apologize if I seem absent minded sometimes. Sometimes I forget I'm still awake and say things out loud. Inside I am beginning to burst at the seams. There are so many secrets ... so many scars ... so many stains. This is me. Welcome to my world.
This entry was posted in Uncategorized and tagged , , , , , , , , , , , , , , , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s